Andrew weighs 11lbs and 7 ounces. He has come so far! He is still on oxygen but it is easy to manage. We have been dealing with so many preemie issues for so many months we almost forgot about the spina bifida but it came rearing its ugly head. We went to urology and they said Andrew's bladder isn't functioning well. He has way too much bladder pressure. A normal person has 40% pressure before they realize they have to go to the bathroom. Andrew's goes above 110% before he realizes he needs to go. So I have started cathing him. It is also very easy to manage. A little time consuming but he has been such a good sport about it. My heart broke for him though. Knowing he will do this the rest of his life is tough. However, I know he will know nothing else so it probably won't bother him. Being at Children's in Philly and looking at what some other families are dealing with I have to keep counting my blessings. Plus he is doing so well in other areas.
happy holidays to you, kelly! i have not checked the blog in a while and was excited to see that you had a recent pic up. Andrew is super cute! i hope that you all have a wonderful christmas. what an amazing year you have had. i am wishing for a great (but uneventful) 2012 for both of us. i don't know if you are on Facebook, but there is a group for families that have had the fetal surgery. lots of good mamas on there and a good place to go and vent or ask questions. here is the link. it is a closed group, so you just have click the button to request to join.
ReplyDeletehttps://www.facebook.com/groups/300463146638673/
Hurrah for you for getting through the last months. You all are amazing!
Sarah
So happy to hear he's doing well!
ReplyDeleteHi Kelly!
ReplyDeleteAndrew looks great in his Santa suit. Happy 1st Christmas together with A.
Annie
Oh, what a cute picture! Merry Christmas!
ReplyDeleteWhat a big strong boy!! The cathing will seem like nothing soon :)
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