I'm so sorry it has taken me so long to update this. We had so much going on with the move. We finally made it to Colorado. Andrew and I ended up flying. It was so much easier than driving.
Andrew is doing so well! He weighs almost 10 lbs. He did need to be put back on Oxygen once we got here because of the altitude. He is on 1/4th of a liter and he desats if we take it off. The docs said that was normal and he may need to be on it for a year. Other then that everything is good. We had our appt at the spina bifida clinic at the Children's Hospital in Denver and they couldn't believe how good he looks. They were so impressed with Children's Hospital of Philly. Denver wants to start doing the surgery next year and thought Andrew was a good example of all the great things that can come from the surgery. Even though he was born so early probably because of the surgery the good far outweighs the bad.
Being home has been better than anything I could have imagined. Having my family whole again has been amazing. The NICU seems like a lifetime ago now. Looking back at the experience has made me appreciate everything in life so much more.
At first being home was a little overwhelming. I was used to a world with just Andrew and I. I had no responsibilities other then Andrew. When you get home you have dinner to make, a house to clean, other people to take care of ect.... but I have adjusted and things are even better. What a long long scary yet wonderful journey this whole thing has been and we are just getting started.
I can never thank everyone enough for helping me get through what I hope is the toughest experience of my life. I don't know how I would have managed without the love and prayers. Like I have said I fully believe Andrew could feel the love, prayers and support which helped us get through to the other side of this. The nurses even said they think Andrew was cured by love. From the bottom of my heart thank you.
I'm going to post pictures on this blog at the end of every month. So please check in when you have time!