Sunday, September 25, 2011


I really don't even know where to begin with what has happened over this last week. As I mentioned in my short post on Friday Andrew's breathing tube was pulled on Thursday morning. I was literally shaking as they pulled the tube. I think I was almost as nervous as the night he was born. He did so well and didn't even miss a beat. He was then put on a breathing device called CPAP. He was on that for a day and the docs decided he was doing well enough to be put on nasal canala. This is huge because we thought he would be on CPAP for at least a week. Then there is another breathing device below CPAP called high flow. We thought for sure he would also be put on that for a week but no he just went straight to nasal canala. The next step after nasal canala is NOTHING! My little guy they thought was going to get a trach this week is almost breathing completely on his own! On Monday we start teaching him to breastfeed. The doc said this morning it is time to get our plan together for going home. It is difficult to even wrap my mind around any of this. I'm really trying hard to live in the moment and just be happy. I find myself smiling on the outside to people but inside I'm worried about everything that could go wrong. I think the ups and downs of the NICU has done that to me. I'm scared to get my hopes up because something could be right around the bend that will dash them. I made a vow to myself that once I leave the NICU I will be the positive person I was before I got here. I just know we wouldn't be where we are right now without all the support, prayers and thoughts from friends/family and people that I haven't even met. Thank you so much!!

Andrew was so excited to get his breathing tube out. He has been looking around non-stop. He picks his head up and moves it side to side. When he had the breathing tube he wasn't allowed to move and now he is making up for it. I'm just so proud of him. He has been so brave and strong.

5 comments:

  1. YEAH! What an amazing update!! I hope everything goes smoothly! If you have an breastfeeding questions/problems, let me know. I'm no expert, but I've helped lots of friends because of my not-so-great-in-the-beginning-but-it-evetually-worked-out kind of experiences :)

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  2. Oh! I have tears! That is just incredible. I totally understand being a bit traumatized and jaded from the NICU experience--that's natural. You've been through a terrible experience, and don't underestimate the effect that can have on you. But you'll get back to yourself soon. I'm so happy for you and Andrew. Once you get home, everything gets better.

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  3. Wonderful, wonderful news. We send continued prayers as Andrew learns ton feed and breathe on his own.

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  4. Also meant to say how wonderful it is to see hips beautiful face free from so many tubes! Handsome boy!

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  5. Kelly! This is AMAZING news! Prayers are paying off and Andrew is the MAN :) He looks so good - thanks for posting a pic. Chubby little cheekers I could just bite 'em.

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