Tuesday, October 25, 2011


Sorry I didn't update on Friday! Things have been so hectic but in a great way. I left CHOP and went to a town a half hour away where family lives. I didn't want to go completely cold turkey from CHOP. I thought if anything happened I wanted to be close by. Then on Wednesday I travelled to Pittsburgh. Andrew did so well in the car. He just slept.  I'm going to Colorado on November 1st. It has been nice being home but I'm so ready to stop living out of a suitcase and just get to my house and settled.

Well having Andrew with me and out of the hospital has been the best thing that has ever happened to me. I keep pinching myself to make sure I'm not dreaming. I was worried I would be overwhelmed by everything but I haven't been at all. I have gotten the hang of giving him all his medications and his feedings. Just being a regular mom has been so fun. We go on walks and cuddle on the couch. He is my little miracle and I thank God everyday. I'm so thankful to everyone that prayed and sent love our way. As I said before I really believe Andrew could feel all of it and it helped him get stronger. We went to the doctor on Friday for a check up and Andrew now weighs over 8lbs!

I will post pictures as soon as we get out to Colorado!!


  1. I love this update! So happy for you! And i got the cute card today <3

  2. Hello Mike and Kelly

    I wanted to stop by to let you know that on November 30th, 2011 at 7pm Dr. Marc Levitt, Director of The Cincinnati Colorectal Center for Children, will be holding an online Q & A relating to fecal incontinence due to Spina Bifida, as well as, explaining the Bowel Management Program he has designed to battle this difficult problem. The RSVP page is posted below if you are interested in logging on and attending and please feel free to contact me with any questions you may have concerning the event. Hope all is well and I hope you find this resource helpful on your journey!

    RSVP: http://www.eventbrite.com/event/2504065728


    John Martin
    Partner's Hub